August 23, 2009

• Where do I begin? Maybe bullets would be helpful?

  It's been a while and there so much that you can't just share on facebook.

  So for your reading pleasure let's do this in Bullet format lol.

  • School starts here on the 31st of August. Not a second to soon. Of course there is a glitch. There is always a glitch in this house. No news about the nurses. I really do not feel she is mature enough to attend school without them considering that she has refused to change her trach in over 6 months, she won't even help me change it, just not interested. She is capable of changing it out. I have watched her do so. She has to be reminded then told sometimes several times in order to just do her feedings and exercises. Not to mention her normal defiance. But those things are needed for her medical well being and safety. So if she doesn't get nurses I am not sure what we will do next. She needs to go to school. She needs to be safe. She is not going to do any of these things when we are not right there. On the bright side the last check up went pretty well. He is still concerned that it (her jaw) is trying to fuse back together but said she seemed to have made at least a small amount *he stressed small* of progress. But progress is progress and any progress is a step in the right direction. Nina will be in 5th grade this year!
  • My car is now running again! Thankyou very much to my big sister. She once again saved my bacon and loaned me the money for repairs. Now hubby and I once we are well enough can go look for some type of job. We just need a few hundred more per month to stay afloat. If we had an extra 400-500 per month coming in we could totally even include a family night out once a month and possibly a date night!
  • Speaking of being well enough, I had to take hubby to the ER about a week or so ago. He was having severe double me over "i wanna die" pains every single time he ate or drank. When he could no longer tolerate water I informed my beloved hubby that I didn't care if I had to absolutely drag him kicking and screaming insurance or no insurance he was going to the ER. Thank goodness he finally stopped arguing with me over it ( I had been asking him for 3 or 4 days to go in but he always said we couldn't afford it) and in he went. We got there at about 7:15pm, there were literally about 15ppl in front of us. He got checked and and about 3 hours later we were informed that he has Pancreatitis. I literally felt the blood drain from my body. You see that was what finally did my brother in law in. I knew it was something. The doctors of course tried to tell him it was nothing until I insisted they take a closer look. With all hubbys digestive problems and pains regardless of what he consumed it could not just be nothing. So he was given some meds and put on a new diet that convieniently clashes with his other diets somewhat. One diet they want him on for the GERD says to eat whole grains and the diet for his Pancreatitis says avoid them for example. He is doing better. He was on a clear liquid diet for several days and still has iffy moments but apparently once you have it you have it. Some people never get over it while others have one flair up and thats it. Of course he said it was funny in a way because when that flaired up he didn't have heartburn (of course he was barely eating) at all and as soon as that started to decrease a bit heartburn came back with a vengence.
  • Nina's surgeon finally referred me to a surgeon to discover if I can get things finished or worked on. I would really love to have some of my dental issues finalized. It would be nice to eat what I should be. So anyway I had planned on calling her friday but I got a call from my doctor regarding my recent bloodwork she had me do when I was there tuesday. She called me wednesday but of course it was Seattle week so  I was gone so she told me to come in as soon as possible. Which just so happened to be today.  The news was not good. In fact she had nothing positive to say except I am still here so not to late to fight these problems. These problems are that my suspected Diabetis is no longer a suspect it is the real deal in a real bad way. I have became a human pin cushion. I am now on a pill in the mornings and insulin at bedtime. My liver appears to have decided to take a vacation because it is not working as it should, I also have been told absolutely under no circumstances am I allowed tylenol. My cholesterol is outta wack and my blood pressure is off a bit. I walked out with another 5 meds per day that I can NOT miss. I also have to work harder at my diet somehow. I am worried. I need to change lots of things. I have decided to take it one day at a time. I need to do my regular shopping but I will have to make do with what I have for now. Time to stop pretending everything is ok. I had this STUPID notion that since I had been through so much medically as a kid that somehow I would be spared the horros as an adult. No clue how I figured that would happen though. Well I guess it just supports my religous views.  Or should I view this as one of those precious gifts?? Yeah whatever that's what I thought. Whatever happened to not getting something you couldn't handle? Yep didn't think so either.

  Well there ya go as my life sucks by samantha debois.

  • 6:39 am
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