June 24, 2009

  • CHECK THIS OUT

    Click the link below. Simply click anywhere within the box its kind of fun! Got it from my SEESTER who is a flipping genious although she did not create it. Its really cool mostly us cybergeeks will probably enjoy it more.

    http://lab.andre-michelle.com/tonematrix/

    very fun little gadget.

  • This scares me...

    I have no news/tv channels thanks to the digital transition. So I get my tidbits of news where I can.

    http://www.yahoo.com/s/1090753  (link for full information)

    but this scares me. Does it scare anyone else?

    " North Korea accuses the U.S. of provoking another war and warns it will wipe America off the map."

     

     

     

    Also Nina's surgery lasted about 20 minutes he seemed pleased with everything. No definable difference in her appearance. Might get halo off early, might not. We are still waiting for nurses to be reinstated. We are still fighting her to do every exercise. It could be my imagination but I don't think she has the movement or the ease of movement she had last week. I don't think she trying to move her jaw at all on her own unless I beg her too and then she still fights it. I am tired of being the ONLY badguy. Well hubby and I we are kind of one in the same. Mainly I am but he will if I remind/ask him. He does his best considering he lost medical and with that ALL his friggin meds. That includes his sezuire med and thyroid meds, both which were finally at levels good enough to actually be theraputic.  So he is once again muddling through his days unmedicated. It's kind of like waiting for a bomb to go off and not knowing how long the fuse is.

    Well thats about it here. We go back up on thursday again by train. I am sooooo scared he is not going to like what he sees. The doctor that is. I am always on pins an needles but moreso the longer this goes on. In my brain this has been going on since November so as you can imagine if you know me at all that I don't really sleep anymore rather I rest my eyes as dad used to say. I am actually looking forward to the lull after the appointment as I have made a wonderful new friend who not only is a lot of fun to chat with but knows what I am talking about. No offense to any of my other friends but even my medical trained friends tend to just look and nod when I chat them up. This gal and her VERY cute lil guy are going through this crud right now. I will ask If I can post her link she is pretty amazing! I look forward to seeing her each week when I go for followups. She and her lil man are inpatient through their THIRD attempt at distraction. I will be very VERY happy when they get to go home as it is LONG overdue but secretly and selfishly a little sad to because we live on opposite ends of the state which will be hard to get together as often.  Thank goodness for yahoo messenger though and black berry phones lol. See you guys tomorrow for lunch Miss C and lil man!!!!

June 16, 2009

  • Seattle OR Bust

    Well we are back in Seattle this time the whole family... Nina has her minor (supposed to be minor) procedure tomorrow at 10AM... She is allowed a small glass of juice (apple) no later then 6AM...then nothing after... hopefully she can fall asleep again. Shuttle leaves hotel here at 8:30 AM and we have to be there at 9 so it should work out fine.

    Will update when I can.

    Will be chatting from my blackberry tonight so if anyone wants to chat and I don't reply we are either sleeping or out for dinner/walk. Also remember typing over the phone takes much longer.

    Cya all!

  • Sad and Other News.....

    It was one of the hardest decisions I had to make. I could not let him suffer. We had to put our little Buddy down. Even though I had vaccinated him he got Parvo anyway. He was such an unexpected blessing in our home. He really did change us all we seemed to always smile and be just in general happier. It gave Nina a reason to be more cooperative in the hospital so she could get home to him. He was sooo happy to see us when we got home that he immediately forgot he was afraid of going down the stairs (going up was already mastered) and ran at full speed first to me then to Nina... We were licked every where. He instinctively knew what was ok with Nina's device and never even tried to cross the line. He was soo smart. Our nightmare started on Wednesday after William's birthday party. He was fine all day. Almost as soon as the sun set which led us and his vet that he maybe had eaten to much because he was also still beating us up in regular intervals. When he continued getting sick late wednesday night I was instructed to remove food/water for 3/4 hrs and if he stopped vomiting he would probably be ok. He stopped and the next morning Nina and I had to go to Seattle for her check up (more on that below). He wagged his tale and even though his appetite was small he was eating and keeping it down. When I got home hubby mentioned he was barely eating but seemed to drink some. I called the vet and they told us to force at least 5ccs of water an hour. When were up all night but when he started vomiting again friday morning we took him. The vet did all she could. Said she hadn't seen a case strike so fast in a while. He passed early saturday. It was the hardest thing I had to do in my life. I will never forget the look in his eyes it haunts me when I sleep.

    It hurt to much to post it right away. I never knew how attached we would get. He is very missed. The house even seems sad without him here. In time we will find a new furbaby but none will ever fill the place in our hearts as our little Buddy!

    We miss you!

    HNI_0039

    His favorite snoozin spot.

    HNI_0005

    His fav toys.. a ball and a sock with the "you woke me up for this?" look.

     

    IMG00052-20090510-1617

    IMG00044-20090509-0045

    IMG00034-20090508-1809

     

    IMG00113-20090609-2119

    no comments on the hair I was dozing happily and the kiddo teasin me earlier didn't help

    below is nina's new do on hair cut day

    IMG00096-20090522-1744

     

    Other News:

    Here is a pic of Nina in the hospital after she woke up. The device isn't as horrid as it looks!

    HNI_0091

    Still Lots of swelling but but cute as hell. And yes those are kleenexes balanced on her head. She was bored what can I say.

    We get to go back in for surgery... Below are random pics of her over the last year... Be amazed be very amazed..

    Next surgery is Wednesday.... will post updates when I can.

    IMG00061-20090514-1145

    taken 6/15/08

    IMG00063-20090514-1146

    taken 5/08/09

    IMG00134-20090610-1805

    taken 6/15/09

    below is my whole family I am very lucky...

    IMG00120-20090610-1724

    William, Hubby, and Nina On William's 10th bday!

June 6, 2009

  • Home sweet home

    we made it home safely. sure fills so good to be home.Did you know that you can blog from your Dsi? Just by writing each letter one the touchscreen? It's so fast!!! Fun 2!
    Buddy sure has grown and he really seemed to miss us. Nina is doing very well even plays with her friend. I'm going to try to send some pictures of her from my Dsi hope it works! ※※※※
    Yours Truly,
    Sam & Family

June 3, 2009

  • Discharged

    Wow what a week! This has been one of those emotionally and physically draining weeks. We have been discharged. Nina is doing REMARKABLY WELL! Her speech has improved by leaps and bounds. We are still in Seattle but at the hotel. Luckily it is typically a quiet hotel and if we do not mind having breakfast a couple of times a day then we should be fine. Btw we don't mind as we both love waffles and breakfast foods and often have it for dinner at home. Speaking of home, we will be in Seattle the rest of the week... The doctor has compromised with us and agreed we can go home on Friday after a check up on Thursday. Then we will be back every week for the duration of this procedure.

    It feels good to be out of the hospital and we may even get some rest caught up before we go home. We really can't wait to get home though. We are missing Daddy and Buddy. We are missing the peacefulness of home.
    Well I will be online for the most of the rest of this week. If you wanna chat lemme know. If Nina is on the computer she will tell you it is her if she doesn't know who you are. There are a couple people that she knows of.

    I am gonna go to bed or try. If  I don't fall asleep I will be back in search of games lol. Talk soon and thanks for everyone fo your continued support and kind words. I am so proud of how brave my Nina has been and continues to be. She pushes through the pain. She is even willing to let me post some picures. Those are going in a protected post probably tomorrow.
    Goodnight my dear freinds.
    Sam

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May 29, 2009

  • FYI

    Contact info is below in a protected post let me know if you wish to see it and can not. I was asked by several friends to post it in case any one was wondering.

  • No change

    Nina is doing well getting a bit more communicative. Her surgeon came in this morning and the first thing out of her mouth was "YOU DID THIS TO ME!!!" It was hard not to laugh because I think it is the first time I have ever heard that line and have it totally fit lol. Normally hubby and I tease each other with that line when we get colds from one another. So that means her humor is coming back lol. She misses her buddy and her daddy.

    My sisters is Cali have sent her flowers but she could not have them in ICU so she is getting them today. I got her the monkey she wanted. I almost died when I saw the price but she has definately earned it. It was $35!!! I could get the same toy for about $15 at home but I am not home and she has earned that and so much more. As you know I do not typically buy her stuff like this as most of her stays have been minor but this one will defiantely go down in the history books.

    We are also working one exercising her newly moving jaw! So after she does her next exercise I will be giving her the surprise. I know how painful it is but it must be done so it doesn't refuse to the skull.

    She also got up and walked to the bathroom today. A little unsteady but she was on her feet.

    Still so very proud of my girl.

    Also after some thought I have decided I am talking to the director of nursing regarding yesterdays nurse. I had only hesitated because I did not want her to retaliate against Nina. Now that we are out of the ICU she has no contact with Nina.

    I got some much needed sleep last night. Private rooms rock! I also plan to nap today.

    Well thats about it for now. Talk soon!

    Love to all.

  • Good News to share (FINALLY)

    Let's start with the good news

    1. We are off the vent and have been since about 11am (that's my girl!!)
    2. We are out of ICU
    3. We have actually seen the beautiful blue of her eyes and they were not always filled with tears!!
    4. We are off the Morphine! On to better drugs.
    5. We are in a private room!!!!!
    6. Nina was able to kiss me for the first time since november when the last big surgery was done! She even cried a bit with a smile so I knew it was a happy cry she missed her night night kisses. Almost as much as me!

    Now for the rant.

    I am glad to be out of ICU the nurse she had today not once but several times made me feel like the most horrible parent and reduced me to tears when I walked in on her telling my baby girl and I qoute "see you are so bad your mom don't even wanna be around you"

    I have to say I lost it...

    I have enough guilt regarding this surgery without her help.

    How dare she! Who the hell did she think she was? Then she proceeded to tell nina that she didn't know right from wrong. That she needed to learn to behave so people would like her.

    WHO THE FUCK gave this idiot a nursing license? Must of been one of those crackerjack box licenses.

    Let me tie her down to a bed. (which is a horrible thing to watch being done to your baby)

    Stuff her empty tummy full of morphine for 3 days without feeding her.

    Attach a halo to her head during a 13 hour surgery and expect her to be her normal happy go lucky civil self.

    It took every fiber in my body to NOT floor the bitch.... I had to leave the room because I refuse to cry in front of Nina.

    I was of course running on no sleep and little food (not that i don't have food but afraid to leave her to long).

    She then blamed me for the behaviors because I had left to call hubby and use the restroom neither of which parents are allowed to do in the rooms in the ICU. I was gone a whopping 30 mins 2 times all day (an hour total)

    I said she is combative because she is scared and that is when the moron said that was no excuse....

    and of course the comments made to nina followed.

    She (no offense to my friends without kids) had no kids but "i have a dog" she said.

    Well FUCK i have a dog too maybe I can be a nurse!

    I am glad we are out of ICU. I do not like leaving Nina but it is unavoidable I need a break sometimes. But at least now I can take them after she goes to sleep for the night.

    Well I want to be awake for rounds in the morning (at 5AM) so that I can maybe have a quick wake up before Nina wakes and then I won't have to leave until after she falls asleep for the night I am sure I have enough snack type stuff to sustain me through out the day. I may even order me a tray tomorrow. Nina is allowed jello but the meds are not worn off enough to let her eat safely.

    Thank you all.

    Hey "H" and Mom I know that even though it is hard I did the right thing. Scary as hell but the right thing/ thanks for being there for my broken rants in messengers.

    Mom I will be waiting for my morning message in the morning lol....I dont have to leave to reply now!

     

    Dearest Nina,

    I am soooooo proud of how brave you have been. I know how scared you are and I just want you to know you are my world. I can't wait to get home with daddy and buddy. I know you can't either. I am the luckiest mommy in the world.

    Loves and Kisses

    Momma